Monthly Archives: August 2010

This surgery (#22) ended up taking a little over six hours.  The CT scan they did yesterday wasn’t done right, so they had to do another one during the procedure.  Here’s what was done.  First, the catheter on the front … Continue reading →

So, Madison is going back for more surgery (number 22 if you are still counting).  She’s doing OK right now; a little moody from time to time but no puking.  Tomorrow (Tuesday) she’ll have another revision to address yet another … Continue reading →

Madison seemed in a better mood and she was eating, so we elected to take her home.  She is still not drinking, which can get you back in the hospital faster than a shunt failure, but we are hoping that … Continue reading →

Well, we’re still enjoying the hospitality at Children’s Hospital.  Madison slept OK, and pretty much made it through until 5am.  Her mood is fine, but she is still not eating or drinking.  She refused liquids after about noon yesterday, but … Continue reading →

Well, today was a lot of hanging around.  Madison had her MRI and it looks pretty much the same as the CT scan from Saturday.  The lateral space on the right they most recently worked on looks much better, but the … Continue reading →

Madison was doing well, then not so great again.  She hasn’t been eating or drinking, but overnight she started drinking again.  She woke up at 12:30 or so for some juice and potty time, but otherwise got some sleep.  She … Continue reading →

So I promised some photos; here we go.  The first bunch are from Madison’s recent hospital stay.  One of her therapists recommended we take photos and create a scrap album for her so we can review what happens at the … Continue reading →

Madison had another seizure today.  There is a risk of seizure following any brain surgery due to swelling, bleeding or just general poking of the brain.  That’s why she had the seizure in December of 2008 and we think that’s … Continue reading →

I know it sounds familiar, but Madison had to go back to the hospital this week for more surgeries (#20 and #21).  Over the weekend, she vomited once but we had spent the day in the sun so at the … Continue reading →