So, what did you do this weekend? Nice dinner out? Mowed the lawn? Watched some college football? We didn’t. This weekend brought surgery #23 for Madison. Admittedly, with triplet two-year olds, we wouldn’t be doing any of the aforementioned activities anyway. By comparison to what we ended up doing, however, we would have rather been at home changing poopy pants.
On Friday Madison was not doing well. She had stopped eating and was getting really cranky. Julie made an appointment for her for an MRI and clinic appointment for 2:30 that afternoon. The MRI showed a significant accumulation of fluid in the right side of her brain. Here is the picture of the scan, The scans are reversed, so the left side of the image is the right side of her brain.
Our regular doctor was away again, so one of the other doctors, Dr. Hankinson, was lined up to do the procedure. None of the other spaces looked larger, so the suspicion was that the catheter draining that specific space had clogged. The plan was to go in and check one or two of the catheters until the clogged one was identified. If all of the catheters were working, one of them might need to be repositioned but that was unlikely.
I joined Madison and Julie at the hospital around 5:30 and by 6:00 Madison was in the OR. At around 9 pm, the whole thing was over. (Note the quick turnaround this time. ID the symptoms early afternoon. Scan at 2:30. Surgery done by 9). As it turns out, the first catheter they checked was not working, so Dr. Hankinson replaced it. We were up in a room by just after 10pm and Madison fell asleep just after 11. Julie went home to be with the other kids, and I stayed at the hospital for the night.
The big scare of this episode was the impact on Madison’s vision. During the day on Friday, she was not making any eye contact and just kind of looking out into space. Since she was so upset by the pain, however, we didn’t think too much of it at the time. When she got out of surgery, however, it became clear that she couldn’t see. When we’d asked what an object was, she’d give an answer but was often wrong and was obviously guessing. The doctors said the generalized increase in pressure might have impacted the optic nerve pathways which could be impacting her vision. We tried testing her again in the room, but she still couldn’t see anything. At around 10:45, her vision started to come back, and she started to identify objects and colors. At this point, she seems back to her normal. Phew…she has enough to contend with.
Madison was up just after 6 on Saturday and she seemed on the road to recovery. She was pretty floppy (didn’t want to stand up or sit up straight), but her mood was vastly improved. The doctors felt, while she seemed better, the most prudent path was to keep her one more night for observation. She’s a pretty complicated case, as you all know. Amanda brought the other two kids by the hospital so we could all have dinner together, and Julie stayed the night with Madison.
She seems in a great mood this morning (Sunday), we’re optimistic this was a quick event. She came home around 10, just in time for football. I take back what I said earlier. We do some regular stuff…